|
|
|
|
|
|
Here I have some
contacts that you might like to check out in the Perth area.
As
I said on the front page - there's not a lot of support mechanisms
out there and hopefully, I can list them altogether for our use.
Familial Cancer
Registry
Co-ordinator:
Lyn Schofield - 9340 1713
Familial
Bowel Cancer Sub-Committee
|
|
|
|
|
|
As a member of
the above committee, I mentioned to the members that I have
started this page and they have agreed that some things can be
posted here to help us understand what is happening in the world
of familial bowel cancers.
There
are a number of these cancers and I will post the names of these
diseases to this page as I find them out.
Well, here are two I
know:
Familial Adenomatous
Polyposis
Hereditary
Non-Polyposis Colorectal Cancer
|
|
I have
some information on desmoids that I am going to read and hope to add
to the page, but I can't say when, so please have patience.
|
|
|
|
|
|
Service
for FAP patients & families & friends
|
|
|
|
|
|
Well, I
know I said this was mainly for Perth, Western Australia, patients
and families and friends, but a friend of mine in Arizona has been
running a project which she'd like us to also have access to. It's
called "Operation Wanted: Books". It is a service where books are
offered to patients with FAP and their patients and carers. This
includes those with desmoids, of course. And, not FAP-related
desmoids have access to this, either. Anyway, the site can be found
at:
Operation
Wanted: Books
|
| | | | |
| |
